Email: info@cdfri.org
ABOUT US
TRANSFORMING SICKLE CELL OUTCOMES
At Crescent Dream Foundation, we believe that helping those affected by sickle cell disease goes far beyond the efforts of a single organization it takes an entire community working together. Our mission is to unite patients, families, healthcare providers, researchers, and advocates to create lasting change.
​
We partner with patients and families to ensure their voices are heard and their needs are understood. Through active listening and community engagement, we help drive policy conversations, influence systems of support, and create lasting change for those living with sickle cell disease throughout Rhode Island.
OUR PROGRAMS
FIGHTING TOGETHER FOR BETTER CARE.
An important part of our mission is sharing valuable insights with the people who need them most — those living with sickle cell disease, their families, healthcare providers, and policymakers. By communicating key findings from our data, we help shape better care, stronger policies, and more targeted support.​
MISSION STATEMENT
Crescent Dream Foundation is dedicated to empowering individuals and families affected by sickle cell disease through compassionate support, education, and advocacy. We strive to transform the sickle cell experience from one of survival to one of thriving, breaking stigma, expanding access to resources, and building a strong, connected community rooted in hope, resilience, and real change.
ADVOCATING FOR REAL CHANGE
From the very beginning, we designed our approach with one goal in mind — advocating for real change. By listening closely to patients and families, we focus on elevating their voices and ensuring their experiences help shape the conversations and decisions that impact the sickle cell community.
​
A clear framework for engagement was established from day one, prioritizing consistent communication, collaboration, and transparency with community partners, advocates, and leaders across Rhode Island. By sharing this vision early, we strengthened trust, encouraged meaningful dialogue, and built the collective commitment necessary to advance lasting change.
WHO WE SERVE
Sickle Cell Disease (SCD) impacts an estimated 100,000 people across the United States.
This inherited blood disorder can cause a range of serious, lifelong health complications and may shorten life expectancy. The challenges are compounded by systemic barriers to care, as more than 90% of individuals living with SCD belong to racial minority groups, making equitable access to quality healthcare even more critical.